Patient Associations

National Organisations

• Anticoagulation Europe
  
• Association for Children with Heart Disorders
• Association for Children with Heart Disorders, Scotland
• Cardio and Vascular Coalition
• Cardiomyopathy Association
• Childrens Heart Federation
• Heart Line
• Little Hearts Matter
• Marfan Association UK
• Pulmonary Hypertension Association (UK)

European Organisations

• ANCC, Association Nationale des cardiaques congénitaux [France]
  
• Foreningen for Hjertesyke Barn [Norway]
  
• Jemah [Germany]
  
• Nederlandse Hartstichting [Netherlands]

International Organisations

• Adult Congenital Heart Association [US]
• Adults with Congenital Heart Conditions [New Zealand]
• Canadian Adult Congenital Heart Disease Network [Canada]
• CHARGE Syndrome Foundation, Inc. [US]
• Childrens Heart Society [Canada/North America]
• Heart Children New Zealand Inc. [New Zealand]
• Noonan Syndrome Support Group [US]

Found a website that you think should be listed on these pages, please send details to antony@guch.org.uk.

Inclusion on these pages is not an endorsment by GUCH, GUCH has no control over the content of these sites, thus is not responsible for the quality of information or accuracy of the information contained within.