GUCH Patients Association Research Policy

Overview

GUCH Patients Association welcomes the opportunity to work in partnership with researchers, when their research is likely to benefit patients and the patient's participation will be empowering and their experience of it will be rewarding and pleasant.

We are a small organisation and focus our limited resources on patient services, so unfortunately we are rarely able to fund research ourselves although we are happy to join you in writing joint bids to funding bodies.

Conditions of participation Process

Research proposals will need to-

1. Have been passed by the researcher's own ethics committee.
2. Have the approval from the former chair of our Patient Representative Group (no longer active) , Beth Greenaway.
3. Be approved by GUCH's board of trustees

Please approach GUCH PA in good time to allow this to happen (usually a minimum of 3 months)
Participants

1. All those involved will have volunteered without fear or favour in full knowledge of what is expected from them.
2. Patients will understand :-
3. Why research is being undertaken
4. Who it's for.
5. How the results will be used.
6. Patients will full have access to the research findings.
7. Patients will have their own personal expenses fully covered.
8. Patients will be treated with dignity, courtesy and respect at all times

Contact

Please call John Richardson on 01473 252007 or e-mail john@guch.org.uk and he will be very happy to find ways to support your research.